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H3 Africa: Ethical, Legal and Societal Issues (ELSI) Research ProgramNotice of Intent to Publish Human Heredity and Health in Africa The NIH Common Fund, in collaboration with the Wellcome Trust, will This is a Notice of intent to publish a new FOA, the H3Africa ELSI The new FOA, RFA-RM-12-005, entitled Human Heredity and Health in Africa Finally, it is critical that all parties interested in applying for the There is no monetary fee APPLICATIONS ARE NOT BEING SOLICITED AT THIS TIME. Inquiries Please direct all inquiries to: Ebony Bookman, Ph.D.
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Bookmarked by Editorial Team on 6 Jun 2012
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Global Forum Stakeholders Meeting in RotterdamThe NIH Fogarty International Center, the Wellcome Trust, and the UK Medical Research Council are planning an informal stakeholders meeting to discuss reinstating the Global Forum on Bioethics in Research. The meeting is scheduled for 6 - 7.30pm on Thursday 28th June at the World Congress of Bioethics in Rotterdam. ATTENDEES AT THE WORLD CONGRESS WHO WOULD LIKE TO JOIN THIS MEETING SHOULD EMAIL JOE MILLUM (JOSEPH.MILLUM@NIH.GOV). The Global Forum on Bioethics in Research (GFBR) was established in 1999, and for 10 years served as the principal global platform for debate on ethical issues surrounding international health research. The Forum brought together researchers, policy makers, community members, and ethics experts from developing and developed nations at its meetings. Its purpose was to provide an open and transparent dialogue between delegates from the global north and south about the ethical challenges that they face. In 2008, the GFBR was put on hold, in order to re-think the role, format and governance of the GFBR. We are now looking to discuss the future scope and direction of a re-instated GFBR with stakeholders and people who are likely to participate in or benefit from a revised GFBR. At the stakeholders meeting, we would like to explore what the function of the GFBR should be; what type of Forum is preferable and what are the current key ethical issues in global health that the GFBR might help to address. We would greatly welcome your views on the Forum and hope you will be able to attend.
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Bookmarked by Editorial Team on 25 Jun 2012
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ARESA Newsletter June 2012In the link please find the second ARESA newsletter. It should be of interest to researchers and Research Ethics Committee members.
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Bookmarked by Editorial Team on 25 Jun 2012
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About MRCT | Multi-Regional Clinical Trials (MRCT)The MRCT Center at Harvard is a new initiative to improve the design, conduct, and oversight of multi-regional clinical trials. The Center has a focus on trials involving the developing world: To simplify research through the use of best practices;
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Bookmarked by Susan Bull on 29 Jan 2013
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Experts give top concerns on genetic testsWritten by John Donnelly on February 2, 2012 In the final session today before the Presidential Commission for the Study of Bioethical Issues, Chair Dr. Amy Gutmann asked all the experts who presented information to talk about their greatest concern with genetic tests. Gutmann, the President of the University of Pennsylvania, told them: “The Commission is very likely to focus its report on issues of privacy broadly construed. Anything that is relevant to privacy would be of great interest to the Commission.” Among the responses: Jane Kaye, Director of the Centre for Law, Health and Emerging Technologies at Oxford University: “I would say I see the whole genome sequencing is another twist on things happening already on science. … What we need to do is make (privacy concerns) more nuanced and allow individuals to say how whole genomes are used.” See link for the rest of this blogpost
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Bookmarked by Dina Bogecho on 9 Feb 2012
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