These guidance articles are peer reviewed and provided to give research teams high quality and trustworthy information on how to conduct a task or resolve an issue in the design, conduct or reporting of a clinical trial. Articles are accompanied by resources, such as a template or example documents. These are free for you to download and adapt for your study. Please acknowledge www.globalhealthtrials.org if you use these.
The Wellcome Trust commissioned CM Insight to conduct some focus groups to try to answer these questions, to help give us a better understanding of people's attitudes towards their data in order to inform future public engagement activities.The findings were launched at a Wellcome Collection event, 'Spotlight on…. Private Data, Public Good?'
Literature: The Cooking and Pneumonia Study (CAPS) in Malawi: A Nested Pilot of Photovoice Participatory Research Methodologyby Jane Ardrey, Nicola Desmond, Rachel Tolhurst, Kevin Mortimer
In January 2015, the use of Photovoice as a participatory research methodology was piloted at the Cooking and Pneumonia Study Chikhwawa site in Malawi. Photovoice is a photographic technique that allows communities (including women and marginalised groups) to share knowledge about their perspectives and priorities.